He is one of only 18 people in the US with the rare disease, that steals the vision, hearing and - before the age of 30 - the life of those who have it.
You may recall, Zwan was rushed to the hospital while our cameras were there because he was in severe pain from his condition.
The filmmaker called to tell us that Zwan is out of the hospital and feeling better.
The documentary crew is hoping the film will help raise money for research to fight the disease, as all profits from the movie will be given to the Ellie White Foundation, which raises money for scientific research for Wolfram syndrome and other rare genetic disorders.
The documentary film crew is trying to raise more money to complete the film. To learn more, go to www.goelliego.com.