Wilmington, NC - WECT - Marlie Karns is just like any other nine-year-old girl. She has painted toe nails, a bed full of stuffed animals, and absolutely loves Justin Bieber.
"She will always chose Justin Bieber, she makes decisions with her eye gaze," said mom, Andrea Karns.
Marlie's life hasn't been easy. She was born nine weeks early, and when she was a year old she was the 19th person in the world to be diagnosed with aromatic L-amino acid decarboxylase deficiency. While the terminal disorder can send Marlie into seizure-like fits and gives her no control over her body, she still has the same brain function as any other nine-year-old kid.
"She's funny, she has a great sense of humor, she's just like any other nine-year-old, but she's stuck," said Karns.
The disorder confines Marlie to her bed or wheelchair, and she spends most of her time in her bedroom watching, listening, and learning about Justin Bieber.
"Marlie can't go to the park, she can't play outside, she can't play with her brother and sister, she can't have the experiences of other kids, but this is her one joy," said Karns.
Karns says Justin Bieber always puts a smile on her daughter's face, and even has the ability to improve her condition, helping her breath the other night when she was struggling.
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